Everywhere I look I see circles.
We are born and along the way we may get married, find
fulfilling careers or have a family, but in the end we die. That may look
linear to some. But to me, I see arcs, tangents and curves.
20 years ago in June, my parents bravely and I believe proudly,
announced to their friends they had a new granddaughter and this granddaughter
had down syndrome. I know this was not easy for their generation, they never
knew any one with down syndrome. Babies at that time where either given up at
birth and institutionalized or hidden away in families. The idea of educating people
with down syndrome was unheard of and the life expectancy of these babies was
about twelve, mainly due to un-treated medical complications. As children my parents did not know anyone
with down syndrome, although there were the pregnant moms who came away from
the hospitals without their babies. Death “at child birth” was common.
20 years ago in June, John and I proudly, and bravely, announced
to our friends that our beautiful baby daughter had down syndrome. This was not
easy for us either, we had never known anyone with down syndrome. Babies of our
generation where either given up at birth and institutionalized or hidden away
in families. The idea of educating people with down syndrome was unheard of and
the life expectancy of these babies had increased to about twenty, with the
advent of some medical care. As children
we did not know anyone with down syndrome, although there were the pregnant moms
who came away from the hospitals without their babies. Death “at child birth”
was common.
Alex and my college buddies |
Almost twenty hours ago, my parent’s generation and mine
gathered together for a celebration of Alex, an almost twenty year old Special
Olympic Medalist with down syndrome.
Alex was greeted by handshakes and hugs. She politely shared
her story of South Korea and graciously thanked everyone for their gifts. As always
Alex “worked” the room, speaking with the guests and smiling….always smiling.
Her cousins and sister came, the new generation who do know people with down
syndrome, the generation who brag “they have a sister and cousin with down
syndrome".
Alex and her cousins |
Alex and her sister and "adopted" sister |
In those 120 minutes I know Alex made a difference in
the minds of people from fifty to eighty. Our guests left knowing people with down
syndrome should not be institutionalized or hidden in families. People with down
syndrome live in our communities, go to our schools and accomplish great
things. People with down syndrome can travel 5,500 miles from home by
themselves, compete in foreign countries for their country and make their families
proud.
And that is a circle.
Beautiful! Thanks for sharing!
ReplyDeleteThank you for your kind words!
DeleteTraveling full circle. How perfect.
ReplyDeleteThank you so much for reading our story!
DeleteTraveling full circle. How perfect.
ReplyDeleteI loved this!! You have a remarkable daughter. Changing perceptions and hearts.
ReplyDeleteI think we all have remarkable daughters :)
DeleteWell said.
ReplyDeleteThank you - I knew you would be able to relate!
DeleteAwesome post! Congratulations Alex!
ReplyDeleteThank you so much for following!
DeleteThis brought tears to my eyes, thanks for sharing your Alex with us and for paving the way and making our journey that much easier and enjoyable! Thanks.
ReplyDeleteAh..you make me blush :) We love sharing our journey it really is remarkable.
DeleteSeriously one of my favorite posts of yours! You are an inspiration to me and your daughter shows me all the things I hope for my son who is almost 4 years old. Thank you!
ReplyDeleteThank you for reading about us!
DeleteSeriously one of my favorite posts of yours! You are an inspiration to me and your daughter shows me all the things I hope for my son who is almost 4 years old. Thank you!
ReplyDelete