Alex has a slower metabolism than John or I, and she does
not monitor her food intake as we do. This began to manifest itself around puberty and has been a challenge throughout high school and now post high school. She is currently 30 pounds overweight and
it is unhealthy. If I had a dollar for every person who told me that is was
okay for people with down syndrome to be overweight because that is “the way
they are” I would be in a better place financially than I am now. There is NO
reason in the world that Alex cannot be fighting weight, after all she is a
world class Special Olympian, – it is all about the approach and how she learns
new behaviors.
I wrote the following in February, 2011:
I love potato chips,
bologna and girl scout cookies, and that’s just this month’s choices. Last
month I loved banana bread, cheese doodles and fritos. I love salt, chocolate
and caffeine all the time.
Alex shares my love of
these awesome dietary supplements, however, I understand portion control, and
Alex does not. I am of average weight and Alex is at least 30 pound overweight.
It affects her stamina, mood and clothing choices. Alex will overeat whenever
she is alone in our house, or thinks I am not paying attention. We have had
many a screaming match and I have not been able to alter her behavior.
I no
longer buy any of my favorite foods, which also penalizes my very skinny 15
year old son.
I am disappointed and
disgusted with myself over this. I obviously have approached this incorrectly
and have a new plan in place. General Mom has entered the war zone and is ready
to take over. Good thing I am a Gemini!
Like all good generals
I tried a couple of different plans before I settled on the one that will bring
me an honorable victory.
Plan 1 - Enlist a
talented and successful Lieutenant who specializes in this type of warfare,
Jenny Craig. My recruitment strategy was to help Jenny understand this war was
an opportunity for exposure to a population she had not worked with before. I
explained that many young adults with special needs are overweight. I suggested
that the structure, counseling and prepared food tactics of her fighting style
would be an easy win for a person (Alex) with disabilities.
I asked Jenny if it
made sense to work with a person with disabilities as a test case - win one war
and other generals would hire her. I asked if a Valerie Bertinelli of down
syndrome could help grow her business. Jenny graciously agreed, said she would
think about it, but in the mean time I needed to pay her $800 for the set-up
costs and two weeks of food. I realized right away I could not afford this
lieutenant.
So, like all good
generals I moved on.
Plan 2 - Work with the
enemy, convince them you are on the same side. So, I asked Alex to prepare a
chart of her ideal meals. Although her choices are not completely healthy, they
do document portion control. Plus, she does not realize it, but this small
victory on my part set me up to draft a complete battle plan. READ
MORE
Alex was quite successful at Plan 2 and lost ten pounds in
two months. She felt good, looked good
and delighted in how clothes looked on her. However, I made a very rookie general
mistake, I assumed I had successfully changed Alex’s eating habits and I had
not.
Reinforcements in the battle zone is one of the keys to learning for Alex and I had
stopped, thinking I had won the war. Although, Alex still saves half of her
restaurant meal for her lunch and checks her weight on the scale, she has
gained back about seven of those lost pounds. This is not healthy and will
impact her future if we do not take decisive action.
Therefore, I have revisited my battle plan and reverted to
Plan A, enlist lieutenant Jenny Craig. On a trial basis, I enrolled Alex for a three
day package of Lieutenant Craig’s battle plan, her food ($39.99). I asked Alex to
participate in the battle and set-up the plan on her IPad by figuring out her
ideal meals if this tactic is successful.
She has taken this to heart and is excited about the concept of “her
food”, and no one else in the family will be able to touch “her food”.
Coincidentally enough (as there are no coincidences in my world)
our refrigerator broke two days ago, and since I do not have a dollar for every
person who told me that is was “normal for Alex to be overweight” we will be
waiting a bit for a new fridge (unabashed plug to buy
my book).
So as of now we have NO food in the house for Alex to snack on,
sneak for or otherwise overeat, and will be an added incentive for Alex to embrace
Lt. Jenny. This was an unplanned tactic in the war against weight, but may
promise to be a very successful one. Just need to figure out how to feed my
very skinny 17 year old.
If this partnership is successful we will sign up for the next package and purchase the food at about $140 a week. Jenny are you sure you do not want a cute 19 year old with down syndrome as your next model? It would certainly boost your business.
If this partnership is successful we will sign up for the next package and purchase the food at about $140 a week. Jenny are you sure you do not want a cute 19 year old with down syndrome as your next model? It would certainly boost your business.
And for those of you, who seem to know so much about down syndrome
without really knowing anything about down syndrome, just send me your dollar
now, and I will buy a new refrigerator and pay Lt. Craig with some money left over.
Wow, this is quite the battle! I look forward to seeing how this continues to play out... Did the portion control issue really not occur until puberty? Here I am, thinking it's so awesome that Samantha will tell us when she's done and has had enough, but if that's gonna change, I'm going to have to be armed and ready, too. :-(
ReplyDeleteMe too!!! Thanks for the note - yes it almost became a power thing for Alex - the only thing she could monitor herself without all the adult intervention and being told what to do all the time that she was getting at school - plus the whole idea or rewarding her with food at school- which despite my stern warnings every year - always managed to happen. They were of that thought that all DS were fat so it was okay. Sammi is lucky she is tall - perhaps that will help her maintain her weight better than Alex (4"10")
ReplyDeleteYikes - I should probably start working on portion control too. Cate is a very healthy eater - loves fruits and veggies, not a huge sweets eater (unlike her mom) but she will easily eat 3 kid portions of mashed potatos before I've even served myself. You've got me thinking that we need to start talking about this and not keeping serving bowls on the table.
ReplyDelete