For the last six weeks Alex has been in rehearsal for her
role in the high school production of “A Chorus Line”. The last two weeks involved late night
rehearsals and Alex was getting home way past my bed time, as well as hers. She
was exhausted.
Alex has the ability to listen to her body, a body which does
not succumb to threats, bribes or other requests to get out of bed and go to
school. She is unable to function when she is exhausted, and this manifests itself
in many ways, including a bad day at school and non-compliant behavior. I must
admit I am much the same, the only difference - I decide to torture myself by
pretending I am not tired, Alex chooses not to, or perhaps she cannot.
For the last few nights of the play rehearsals Alex went to
bed at 11 and as a result would not get out of bed for school. Knowing what I
know about Alex, her body and the torture she would inflict on every single
person at the high school, we agreed to let her stay home from school for two
of these days. This is contrary to our usual approach with Alex, which is always
to treat her as we treat her siblings, but as they say, we have to pick our
battles.
Anyway, back to the play….Alex loves to be involved in
theater and sports, and we have asked that support for Alex to succeed in extracurricular
activities be built into her IEP. We were successful having this included, but
the execution of this has been spotty, particularly around basketball (for the
long saga, search “basketball”).
For the last two years however, Alex’s speech therapist has
been actively supporting Alex in learning and articulating the lines for the fall
play. Additionally, as with everything Alex does, a few of the students in the productions
have always stepped up to the plate to mentor Alex. This mentoring is sometimes
facilitated by the director, and sometimes not. It takes a special director to include,
and welcome a person with disabilities in a theater production and we have been
quite lucky.
The spring play at Alex’s high school has always been a
musical. In the past Alex has shied away from trying out. Perhaps she is intimated
by the singing or dancing, although she participates in the Challenge Aspen
musical every year for people with disabilities. Perhaps she is more
comfortable in an environment here she feels she can shine and recognizes her
talents are different than those of her peers. I do not know, but my guess is
confidence must be a part of her reluctance.
This year, Alex’s fall drama coach (one of her biggest fans) encouraged her to try out
for the musical and with his encouragement Alex gained the confidence to
audition. Call me nervous or battle worn
but when Alex has the opportunity to participate in something new I get
nervous. Will the kids welcome her? Will the musical and choreographic directors
know how to include her? Will she feel different and isolated from the cast? The
questions go on and on, and my shackles go up.
I am happy to say, that once again I devoted my worrying
energy in the wrong direction. I did get early phone calls from the two directors,
and they were very honest in voicing their concerns. I was equally honest in voicing
my confidence in Alex and her ability to do anything successfully when she is
welcome, included and supported. I did get the “we do not have enough resources
to work independently with Alex” and I did give the “give her a chance and believe
in her” speech. And that was it….
During the five month period from these first phone calls,
to the production in May, the musical director was communicative, brought concerns
to my attention and everyone worked together to make this a successful experience
for Alex, and the students. And as I said, I should have worried about something
else, like life after high school……
Alex was given a role that did not involve dancing, as she
was quite adamant she did not want to dance or sing. She was given a “new” role
as the assistant to the assistant to the director. She had minimal lines, but
always felt as if she was an important part of the act. The huge success
however, was cajoling and convincing Alex that she could dance, and seeing the talent that was in this show, I know that was not an easy feat.
Alex participated in the last dance of the show “Bows” and
from my very humble perspective danced her heart out and participated just as
much as any other cast member. This did not happen by itself. Alex, Tim, Brooke,
Owen, Katie, John, and countless others all contributed to this success. And if
these exemplary people taught even one person, whether it was a cast or audience
member, to believe then they have made a difference. Thank you!
It was truly “One Singular Sensation”. Video to follow.
Such a great pic and post! Thanks to Alex and you for your ongoing inspiration!
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