In honor
of Down syndrome awareness month I will be publishing excerpts from “From Grief
to Celebration, How One Family Learned to Embrace the Gift of Down Syndrome”
for 12 days. Each day features a different verb/chapter and at the end of the
month we will give-away three copies of the book, signed by Alex.
Priceless!
I
wrote, "From
Grief to Celebration, How One Family Learned to Embrace the Gift of Down
Syndrome" to share this story of love, life, magic and down
syndrome. Our critically acclaimed book details our journey through ten verbs
beginning with grief, ending with plan and incorporating one bonus verb,
celebrate. I hope this can be a resource to help others embrace,
understand and learn. The book is available through this blog ($12.50)
on-line booksellers ($13.99) and kindle (reduced to $3.99 during October).
Verb 9 – Practice Healthy Skepticism
I learned
very quickly that, as is the case with many mothers and their children, I know
Alex best. I’m the one who always expects the best from her when others may
not. To me, this almost automatically means others’ expectations of Alex could
be based on erroneous facts and/or experiences from years ago when early
intervention programs did not exist and ignorance did. I’ve programmed myself
to be doubtful of many of the insights shared by Alex’s educators, but I
endeavor to listen as best as I can. Practicing practice healthy skepticism and
maintaining a positive and helpful attitude about Alex and her capabilities is
essential to her development and education.
All
children with special needs are tested to determine their IQ scores at some
point. In my opinion, this is one of the dumbest indicators of anything I have
ever come across. However, it’s also one of those ridiculous things that are
required to “classify” a child, which in turn is needed to provide services.
Alex does
not perform on command; she sees no sense in random tests and usually does not
cooperate. This doesn’t bother me in the least, but it does produce the lowest
IQ scores you can imagine. If I believed her IQ score, then I would assume she
is unable to perform the basic skills needed in life.
Although
Alex’s IQ level indicated the following should not be true, here is a list of
Alex’s skills (at age 17). She can:
Personal
·
Dress herself,
·
Brush her teeth and hair
·
Attend to all personal matters, i.e. showers, girl stuff
Academic
·
Read and comprehend at a third to fourth grade level
·
Add, subtract, multiply and divide at a third to fourth grade
level
·
Memorize her class schedule
·
Navigate the busy hallways at school to get to all her classes on
time
·
Unlock her school and gym lockers
·
Bring home oral messages from her teachers
·
Participate in science labs, presentations, etc.
Sports
·
Ski
·
Play basketball, soccer, tennis, softball
·
Run, skip, hop and jump
·
Bowl
·
Ice skate
·
Ride horses
Other
life skills
·
Express her needs and wants
·
Clean her room/make her bed
·
Do her laundry
·
Prepare all her meals (microwave as needed)
·
Count money
·
Find her way home
·
Stay home by herself
·
Cross the street
·
Recognize “stranger danger”
As of
today, Alex cannot:
Academic
·
Stay focused when she does not understand the subject matter
·
Comprehend reading materials beyond a fifth grade level
·
Do algebra or geometry problems
Sports
·
Ride a two-wheel bicycle
Other
Life skills
·
Drive a car
·
Take the public bus without supervision
·
Monitor her food intake
(NOTE –
Alex is now 19 and has mastered some of the “cannot” skills)
To read more please enter our give-away:
These are only two requirements to be entered in the drawing - and Alex will pick the winner!
1. Please like "The Ordinary Life of an Extraordinary
Girl" on facebook (link on the sidebar), or
2. Follow this blog, on networked blogs (also on sidebar)
Of course, you will need to tell me you did this, either as a comment or by e-mail theextraordinarygirlllc@gmail.com .
2. Follow this blog, on networked blogs (also on sidebar)
Of course, you will need to tell me you did this, either as a comment or by e-mail theextraordinarygirlllc@gmail.com .
Stay
tuned
20/31
Book Give-away: Plan
21/31
Book Give-away: CELEBRATE
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